Behind these hands - Linda Vigen Phillips

"My hands aren't the same hands as before. Even my friends feel different." Claire Fairchild, 14, has always known music would be her life. So when she has the opportunity to enter a prestigious contest, she goes all in -- until she realises she is also competing against Juan, a close childhood friend and one of the most talented musicians she knows. It doesn't help that her thoughts about him are turning romantic.
When Claire and her family receive a devastating blow from Batten disease, her world enters a tailspin. Claire decides her musical goals no longer seem relevant. She can't reconcile the joy that music would bring to her life while her brothers succumb to an early and ugly death. Her decision puts everything at risk: her friendship with Juan, her parents' expectations, and her own happiness.
After Claire accompanies a friend on a school newspaper assignment, she meets a centenarian with a unique musical past and only one regret in life. Claire knows something in her life has to change before it's too late, but she's not sure she has the courage to take the next step.