Bauby Jean-Dominique Bauby was born in Paris in 1952. In 1996 he set up ALIS (Association du Locked-In Syndrome). Bauby died on 9 March 1997. He leaves a wife and two children.
'The Diving-Bell and the Butterfly' is one of five classic Fourth Estate books to be released as numbered, collectable editions to mark the 25th anniversary. The books will be beautifully produced hardbacks, limited to 2000 copies each, with jackets designed by some of the finest artists at work today.
On 8 December 1995, Jean-Dominique Bauby suffered a massive stroke and slipped into a coma. When he regained consciousness three weeks later, the only muscle left functioning was in his left eyelid although his mind remained as active and alert as it had ever been. He spent most of 1996 writing this book, letter by letter, blinking as an alphabet was repeatedly read out to him. 'The Diving-Bell and the Butterfly' was published in France on Thursday 6th March 1997. It was immediately hailed as a masterpiece. And then, three days later, he died.
'The Diving-Bell and the Butterfly', which records Bauby's lonely existence, is probably the most remarkable book about the triumph of the human spirit, the ability to invent a life for oneself in the most appalling of circumstances, that you will ever read.
It has now been made into a captivating film, directed by Julian Schnabel and starring Mathieu Amalric, which was the winner of the award for Best Director at Cannes and nominated for the Palm d'Or.
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